People say me , “ Where is your protector God? They say, “ You fool! The modern science has descended onto the moon. Still, where are you?”.

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People say me  , “ Where is your protector God? There’s nowhere that we can see Him”. I said  “ Close your eyes, meditate  and just feel His presence in heart ❤️  This is the matter of feeling divine not of physical eye but of the internal sight. They say , “ Where is your God? There’s nowhere that we can see Him”. I said  “ Close your eyes, meditate  and just feel His presence in heart ❤️  They doubt on God presence I said look toward sky star moon sun changing Cloure of sky and you will feel presence of my protector God  I told, “ This is not an illusion but a hidden sign and a trust in invisible power that is my God my protector  persist ,” Tell us what exactly do you want to prove?” I say, “ Close your eyes, meditate and just feel His presence” My protector god is always there, it’s just us who are absent. That it can’t be explained either in written or by speech. That the my protector God is unfathomable. They say, “ You fool...
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National Policy for Rare Diseases, 2021

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National Policy for Rare 
Diseases, 2021
Why in News?
About
What is a rare disease?
Caregivers to patients with ‘rare diseases’ and affiliated 
organisations are dissatisfied with the National Policy for 
Rare Diseases,2021.
• Aim: The policy aims to lower the 
incidence and prevalence of rare 
diseases based on an integrated 
and comprehensive preventive
strategy.
• The strategy includes awareness 
generation, counselling 
programmes, providing affordable
Health Care among others.
• A rare disease also referred to as an orphan disease, is any 
the disease that affects a small percentage of the population.
• It has a prevalence of 1 or less per 1000 population.
• Most rare diseases are genetic and are present throughout a 
person’s entire life, even if symptoms do not immediately 
appear.
• The commonly reported rare diseases, include Haemophilia, 
Thalassemia, Sickle cell anaemia, auto-immune diseases


Highlights of the National Policy 
for Rare Diseases, 2021 
 
• Categorisation: The policy has categorised rare diseases into three 
groups
1. disorders amenable to one-time curative treatment;
2. those requiring long term or lifelong treatment;
3. and diseases for which definitive treatment is available but 
challenges are to make the optimal patient selection for benefit.
• Government Support:
o The government will provide Financial support of up to Rs. 20 lakh
under the Umbrella Scheme of Rashtriya Arogya Nidhi for 
treatment of those rare diseases listed under Group 1.
o Moreover, Beneficiaries for such financial assistance would not be
limited to BPL families. About 40% of the population, eligible under
Pradhan Mantri Jan Arogya Yojana will also be eligible for 
assistance.
o Further, for group 2, the State Governments can consider 
supporting specific patients. It includes a rare disease that can be 
managed with special diets or hormonal supplements or other 
relatively low-cost interventions (Diseases listed under Group 2).
• Voluntary Crowdfunding: The government has said that it will assist in
voluntary crowd-funding for the treatment of Group 3. It is 
because it will be difficult to fully finance the treatment of high-
cost rare diseases of Group 3.
• The policy also envisages the creation of a national hospital-based 
registry of rare diseases so that adequate data is available for 
definition of rare diseases and for research and development related 
to rare diseases within the country.


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People say me , “ Where is your protector God? They say, “ You fool! The modern science has descended onto the moon. Still, where are you?”.

-
Image
People say me  , “ Where is your protector God? There’s nowhere that we can see Him”. I said  “ Close your eyes, meditate  and just feel His presence in heart ❤️  This is the matter of feeling divine not of physical eye but of the internal sight. They say , “ Where is your God? There’s nowhere that we can see Him”. I said  “ Close your eyes, meditate  and just feel His presence in heart ❤️  They doubt on God presence I said look toward sky star moon sun changing Cloure of sky and you will feel presence of my protector God  I told, “ This is not an illusion but a hidden sign and a trust in invisible power that is my God my protector  persist ,” Tell us what exactly do you want to prove?” I say, “ Close your eyes, meditate and just feel His presence” My protector god is always there, it’s just us who are absent. That it can’t be explained either in written or by speech. That the my protector God is unfathomable. They say, “ You fool...
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